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Spina bifida
- The only private hospital in the UK dedicated to treating women and children
- More than 40,000 babies, children and young people are cared for every year
- 9 level 3 intensive care beds for the highest level of care
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Spina bifida at HCA UK
Why choose us?
Our teams of specialists are here to support you every step of the way. Your child's health and comfort are our priority. We understand that it can be a worrying time if your baby shows signs of spina bifida, which is why we ensure you're supported at every stage and receive a tailored treatment plan.
After your baby is born, a number of tests will be carried out to determine the severity of spina bifida, as this will help your consultant decide the type of treatment.
After your baby is born, a number of tests will be carried out to determine the severity of spina bifida, as this will help your consultant decide the type of treatment.
Spina bifida happens when a baby's spine doesn't develop properly in the womb, leaving a gap in their spine. There isn't a precise reason behind it, but it can cause bowel and bladder problems in later life. In some severe cases, it can lead to mobility issues and paralysis. We can help to support your child.
The symptoms of spina bifida will depend on the location of the gap in the spine. If the gap is higher, it's more likely to lead to leg paralysis and mobility issues. A gap at the lower end of the spine may only cause bladder and bowel issues, such as incontinence.
Sometimes, babies with spina bifida can develop hydrocephalus (excess fluid on the brain). In some cases, hydrocephalus can lead to developmental problems, such as difficulty reading and a short attention span.
Sometimes, babies with spina bifida can develop hydrocephalus (excess fluid on the brain). In some cases, hydrocephalus can lead to developmental problems, such as difficulty reading and a short attention span.
The exact cause of spina bifida isn't fully understood, but it is believed to result from a combination of genetic and environmental factors during early pregnancy. While this may sound concerning, it's important to remember that many children with spina bifida go on to lead fulfilling lives with the right support.
No. 1
The only UK private hospital dedicated to treating women and children
40,000+
babies, children and young people cared for each year
9
level 3 intensive care beds for the highest levels of care
Fast access to specialists
Appointments confirmed within 24 hours
State-of-the-art diagnostics
With results in as little as 48 hours.
Treatments for complex conditions
Our breadth of expertise is focused on your child.
Worried about your baby, but not sure what to do?
Get in touch and book a same or next-day GP appointment.
Have a referral and need to book?
Simply book a test, scan or treatment directly today.
Unsure of a diagnosis and need some answers?
Talk to a specialist and get the answers you've been looking for.
Spina bifida tests and scans at HCA UK
Expert diagnosis, fast results
Spina bifida is a condition that occurs during pregnancy. It's usually picked up on during a mid-pregnancy anomaly ultrasound scan, which takes place between the 18th and 21st weeks of pregnancy. If spina bifida is confirmed, your GP or consultant will explain what this may mean for you and your baby.
Your specialist may also want to carry out some postnatal tests and scans to determine the severity of the condition and tailor a personalised treatment plan for your baby. These include:
- Mid-pregnancy anomaly ultrasound
- CT scan
- MRI scan
- Postnatal ultrasound of kidneys and bladder
- EOSedge (low-dose X-ray)
Spina bifida treatments at HCA UK
Specialist treatment with excellent outcomes
Your consultant will discuss your baby's treatment options with you. This might include surgery soon after birth to close the gap in the spine. Unfortunately, the condition may cause damage the nervous system, which can lead to other problems.
If your baby's condition is likely to lead to developmental, physical and/or mobility problems, your consultant may also suggest other treatments and therapies that can help your child lead a fulfilling and independent life.
- Spinal surgery
- Medications
- Paediatric physiotherapy
- Occupational therapy
- Bowel or bladder surgery
Spina bifida FAQs
Yes, the main types are:
Spina bifida occulta (mild, often without symptoms)
Meningocele (a sac of fluid protrudes through the spine)
Myelomeningocele (the most severe form, where the spinal cord and nerves are exposed)
Spina bifida occulta (mild, often without symptoms)
Meningocele (a sac of fluid protrudes through the spine)
Myelomeningocele (the most severe form, where the spinal cord and nerves are exposed)
Not always. The severity of paralysis depends on where the spinal defect occurs. Some individuals may have full mobility, while others may need mobility aids.
Yes, with proper medical care and support, individuals with mild spina bifida live long and fulfilling lives.
While there is no single genetic cause, having a family history of spina bifida may slightly increase the risk. However, most cases occur without any family history.
Paediatric patient stories
Bode's successful spinal surgery at just 14
Bode's (14) surgery fitted her with one titanium and one cobalt chrome rod on either side of her spine held in place by 18 screws. Comparing the before and after X-Rays, they managed to make her spine perfectly straight which Bode says, "was incredible.” She’s now reassuring other young patients with Idiopathic Adolescent Scoliosis.
Jack's Spinal Scoliosis story
Jack’s mother Jaime noticed his shoulder blades were slightly uneven in March 2020, at the start of the UK COVID-19 lockdown. After being faced with a long wait for a referral, a chance recommendation led Jaime to turn to The Portland Hospital. Here Jaime shares their story and explain why this surgery was so important.
Rhiannon’s courage: Recovering after scoliosis surgery
Rhiannon was an active 14-year-old girl. When she occasionally complained to her parents about aches and pains in her back, there was no reason to think it was anything more sinister than sore muscles from one of her dance classes, or something she’d pulled while horse riding.
“Mr Tahir was incredibly patient with us, answering the many questions we had, and was very kind to my son. I can’t recommend him highly enough.”
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This content is intended for general information only and does not replace the need for personal advice from a qualified health professional.