Yvette (54) a journalist from Kent, started experiencing pain in her hip seven years ago in 2015. An ex-national gymnast who had been incredibly active and flexible her whole life, Yvette felt concerned about the growing discomfort impacting her quality of life, and so sought help from her GP.
Bladder exstrophy
A congenital abnormality where a baby's bladder is on the outside of the abdomen, rather than on the inside. Also known as ectopia vesicae.
What is a bladder exstrophy?
The word 'exstrophy' means inside out. A bladder exstrophy is a birth defect that happens when the skin over the bottom part of your baby's lower abdominal wall does not form correctly. The bladder is exposed on the outside of the abdomen. It is sometimes not detected immediately in girls.
Need to know
Symptoms of bladder exstrophy may include:
- problems with urine flowing from the bladder
- frequent urination as the bladder has a smaller capacity than usual
- the anus may be further down than usual
- the belly button may be further down than usual
- undescended testes in boys (testicles not in their usual place)
- an umbilical or inguinal hernia
Bladder exstrophy is often not detected until your baby is born, when it is clearly visible. It may also be diagnosed before birth using ultrasound scans as part of routine maternity tests.
Bladder exstrophy is corrected in a series of operations over the first few years of your baby's life. The overall aim of treatment is to create continence and good genital and urinary function, alongside preventing any kidney damage.
Your consultant will explain the treatment plan for your baby, as it can vary from infant to infant. It is essential that any child who has been born with exstrophy is looked after by an expert throughout their life. There can be a range of problems with the bladder, kidneys and genitals. Some will need surgery. The follow-up and some decisions can be complex. You will need a specialist to help you.
Patient stories
Yvette's story: From back pain to hip replacement surgery
A new hip and straight back into the spin of things
David’s gym video shows him repeatedly pushing up to 100kg on a single leg press – not particularly unusual for this keen cyclist, former competitive squash player and all-round fitness enthusiast. What is unusual is that 52-year-old David had hip surgery just 12 weeks earlier.
Michael's MAKO hip surgery to treat his arthritis
73 year-old Michael, an avid walker and charity worker, was diagnosed with arthritis in January 2021. After facing long waiting times and increasing pain that was becoming more frequent, he started to look elsewhere for treatment.
This content is intended for general information only and does not replace the need for personal advice from a qualified health professional.