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Bladder exstrophy

Ectopia vesicae

A congenital abnormality where a baby's bladder is on the outside of the abdomen, rather than on the inside

About

The word 'exstrophy' means inside out. A bladder exstrophy is a birth defect that happens when the skin over the bottom part of your baby's tummy (lower abdominal wall) does not form correctly. The bladder is exposed on the outside of the abdomen. It is sometimes not detected immediately in girls.

Need to know

  • Symptoms of bladder exstrophy icon plus

    Symptoms of bladder exstrophy may include:

    • problems with urine flowing from the bladder
    • frequent urination as the bladder has a smaller capacity than usual
    • the anus may be further down than usual
    • the belly button may be further down than usual
    • undescended testes in boys (testicles not in their usual place)
    • an umbilical or inguinal hernia
  • Diagnosis icon plus

    Bladder exstrophy is often not detected until your baby is born, when it is clearly visible. It may also be diagnosed before birth using ultrasound scans as part of routine maternity tests.
  • Potential treatment options icon plus

    Bladder exstrophy is corrected in a series of operations over the first few years of your baby's life. The overall aim of treatment is to create continence and good genital and urinary function. This must be alongside preventing any kidney damage. Your consultant will explain the treatment plan for your baby, as it can vary from infant to infant. It is essential that any patient who has been born with exstrophy is looked after by an expert throughout their life. There can be a range of problems with the bladder, kidneys and genitals. Some will need surgery. The follow-up and some decisions can be complex. You will need a specialist to help you.
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This content is intended for general information only and does not replace the need for personal advice from a qualified health professional.
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